Categories
Bombay, bas

So long, Santro…

A Mumbaikar gets nostalgic about her first car and the feelings of friendship, joy and even sadness associated with it.
Shifa Maitraby Shifa Maitra | @ShifaMaitra on Twitter

She was my first car…actually my first big buy, the symbol of my independence. My parents were excited, my father amused that I was taking them for a drive, my mother got me a beautiful Ganpati and my brother was relieved that he would have the family car all to himself.

It was another time, I was another person, the city was still Bombay and petrol was cheaper! The joy of driving, singing along with the song on the stereo and sitting in the car till the song got over, even after you reached your destination.

It was 1998 I think, the traffic was not so bad and you never thought twice before going alone for a drive at 2 am. It was also a time for growing up, to have fun times and some not so fun times. My silver Santro silently saw it all.

From the late night chats parked at Carter Road with gal pals, to driving back from work at Saki Naka and hoping Bani, my colleague and pal, would offer to drive! Feeling like I had arrived the morning I parked at the airport and flew out for a day trip and came back to the airport and drove myself home…but it was my first, so it felt special.

Looking back today, I also realise that somewhere my sense of independence and responsibility grew with my Santro. No more letting random people drive my car, no more drinking and driving…my friendship could not be put to test because, yes, I valued my car and it was there whenever I needed it, unlike you know who…

It gave me a lot of ‘me’ time and perspective. In fact, it even helped me decide, watching a gorgeous sun set at Madh Island, that I was going to be driving back alone. I don’t know how the other person got home, and if he is reading this, I still do not regret what I did.

Back to fun memories, the drive through the fog to Karjat one New Year ’s Eve, to the time we drove to Pune for my sister’s fun wedding, to mom and me taking off to World Trade Centre almost every weekend to shop and do lunch in town…

…to the times I patiently explained to my car that she had to stay home when I went on a date because sometimes it made sense to let the guy feel important! Or that I would always have a silver car, a promise that I have kept.

Sometimes I still miss those days and that car, that was home to CDs and magazines, shoes that were always there in case I felt like going for a walk, the beer cans and soft drink bottles that had to be disposed off before we got home – those days were fun!

I now have a fancier car and I guess a lot more, but whenever I look back at my Santro days, I smile and that is how it will always be. As the car gets phased out, I just want to say a huge, heartfelt ‘thank you’ from a friend!

Shifa Maitra calls herself ‘a true blue Bambaiya’. She is currently a creative consultant with Balaji Motion Pictures. When not gritting her teeth at the traffic, she reads, writes, and watches movies, plays and people.

(Featured image courtesy jessicapuente.com. Image is used for representational purpose only)

Categories
Wellness

Understanding the FX Syndrome

Have you heard about the FX Syndrome? It is caused by a genetic mutation and it affects several young boys.
by Ritika Bhandari Parekh

Every new born baby’s face is searched diligently for signs of its mother or father’s features. It could have its mother’s eyes or its father’s nose. But apart from these obvious physical attributes, how can one know if the genes responsible for that baby are normal or have gone haywire?

One major impact of this can be the genetic condition known as the Fragile X syndrome (FXS). FXS is caused by a gene mutation in the FMR1 gene, at the time of conception. The FMR1 gene is important for producing proteins that help in our brain’s development.

As the FMR1 gene is found in the X chromosome, it usually affects young boys and results in mental impairment, learning and communication disabilities. FXS is also a major cause of autism in children. Luckily in India, there is an organisation called the FX Society which helps to support families fighting the FXS.

Ami and Shalini41-year old Shalini N Kedia, chairperson of the Indian FX Society, started the organisation 11 years ago because of a personal experience. She says, “I realised that there is very little information about FX in our country. I wanted to do something about this.” Despite no medical background, she decided to accomplish three tasks for society.

“Our main role is to support the families which are already diagnosed with FXS. We give them accurate information and explain the dos and don’ts when dealing with the child. Since it is a genetic disorder, not everyone is acquainted with the science,” she explains.

“One of our major accomplishments is that we are very well networked all over the country today. So if your child tests positive, they are referred to us. And with our team of gynaecologists and paediatricians, we explain how something goes missing in the brain,” she adds.

Accompanying Shalini in her mission is 37-year old Ami Mehta Kothari, secretary of the FX Society. A trained multi-sensory educator, Ami has 10 years of experience in teaching special needs children. Ami says, “Our society also educates professionals in the country, because many children are not diagnosed because of ignorance. So we try to have seminars and workshops in educating people. Our third major task is to give women information so that they can take an informed decision when they opt for another child.”

Since there is no particular cure for FXS, the problems can be improved with various treatments. These treatments consist of special education, speech and language therapy, as also occupational and physical therapy.

The Fragile X Society is present all over the world, with the maximum research being done in the US. They have created reading and writing programmes for special needs children. “We have all the international level programmes, facilities and therapies available in the country. Last year, we facilitated the opening of Ummeed, a child development centre at Lower Parel. Thus, we can claim that any child who is diagnosed will get the best facility and treatment,” says Shalini.

But the crux of the matter is creating awareness. “The rate at which the syndrome is growing, we are definitely looking forward to take professional help of a PR firm in helping us reach more people,” Ami adds.

So if you know any child in your neighbourhood who has attention problems or is undergoing delayed development, help them reach out to the FX Society in India. Alternatively if your parent or grandparent is having balance or tremor-related problems, ask your doctor about Fragile X testing.

For more details, log on to http://www.fragilex.in or call 022 666 42151/+91-98201 99092.

(Featured image courtesy www.babycenter.in. Image is used for representational purpose only)

Categories
Little people

Being buddeez with special children

A South Mumbai-based programme teaches the value of companionship to special needs children and opens a new world for them.
by Ritika Bhandari Parekh

Mumbai is a bewildering city for a newcomer. But give yourself enough time to observe how it works, and you will notice that it has a heart. Entrepreneurs abound and initiatives flourish here because Mumbaikars care. One such initiative is Buddeez.

Ami and ShaliniThe ‘Buddeez’ programme was started four years ago in South Mumbai to offer friendship with a difference. Started by South Mumbai residents Ami Mehta Kothari and Shalini N Kedia, the programme pairs special needs children with normal ones, thus giving each a chance to enjoy the joyous moments of friendship.

What the programme is about

Children with special needs may include those with learning disabilities resulting in dyslexia, or those facing delayed developmental problems causing autism. For young children like them, it is a challenge to have a social outlet for playing or even to make friends. Ami, a trained multi-sensory educator says, “Working with special needs children over the years made me realise that they do not have any interaction with other people, except for their siblings or parents. . I cannot imagine life without having friends, so I felt we needed to do something about it.”

The programme consists of students who volunteer to spend a 45-minute to one-hour session doing activities with a special child. For this, they’ve tied up with BD Somani School, which gives their 11th and 12th grade students an opportunity to become friends with special children. The students also earn grades as a part of their CAS (Creativity, Action, Service) curriculum.

Ami says, “A certain sensitivity and maturity is needed to make the special child feel happy and important. 11th and 12th graders tend to be a little mature and so we have zeroed in on them.”

Shalini says, “We hold two sessions. The first orients the mainstream children with our programme and the special children. The second session is where we talk about the child that they have to be buddies with. So four or five mainstream children who volunteer will have one special child. They are told about the special child’s likes, dislikes, allergies, favourites, peculiar traits. We familiarise the volunteers with this information, so that it becomes easier for them to get his attention.”

The volunteers are friends with the special child for two academic years. From meeting at parks to playing kho-kho or saakli, Ami and Shalini try to incorporate different activities for different children. “Some like to meet at home or play board games, while others love to roam in malls or coffee shops. We encourage volunteers to do activities that these children love,” says Ami.

There is an adult accompanying the volunteers to monitor each session. So if the ‘buddeez’ make pasta for the child that doesn’t like loud noise, the adult keeps a check on both.  Having four or five mainstream children is an advantage because some special kid may just want either boys or only girls to come. So this gives the supervisors the flexibility to adjust.

Success stories

Buddeez is slowly changing how people, especially their immediate family, looks at special children. Ami says, “There was an older special child and his normal younger sibling. The younger one would not play with the brother in the building compound. So one day, all these older boys from BD Somani came and gave him so much importance. They played ball with him and followed his instructions, which gave him a big boost. On the third day, the mother called and said the younger one took the older one down to play – all because the big guys had come and played with the elder child.”

Another incident had a non-responsive child, who for weeks would not play with his ‘buddeez’ group but simply ride his bike. The girls coming for the session were very disappointed with this. But after a few months when the girls were leaving, the child bid them goodbye saying, “See you next week.”

“Since the child was autistic, it was difficult for him to express what he felt. He loved the importance the girl ‘buddeez’ gave him,” reveals Ami.

Shalini adds, “In fact, we make a point to tell them at the orientation that some children will not respond, but don’t give up. They want you there, if they don’t want you, they will push you out.”

The project has the potential to sensitise school children and instill a sense of fulfillment and achievement in them. “They learn to think on their own,” explains Ami. “I remember when we took this child suffering from a lot of allergies and needed gluten-free and dairy-free food, to Priyadarshini Park at Nepeansea Road. He saw an ice-cream stall and demanded one. But the buddeez volunteers realised that he could not have the ice-cream because of his allergy. So one bright child comes up and says, ‘Oh! But he can have orange ice-cream.’ And so we went and got him an orange candy. It makes these children look out for solutions wherever possible.”

Volunteer to be a buddy

“We definitely need more volunteers,” says Shalini. ‘Buddeez’ is currently based only in South Mumbai. “We have special children from Bandra and Chembur who have approached us, but the lack of volunteers makes it difficult for us to go there,” Ami says.

Shalini says, “The attitude that friendship is a luxury for children with special needs, requires a change. It is a necessity, so instead of only working on their reading, writing, math and cross motor skills, we should make an effort to teach them friendship.”

If you wish to volunteer your child for ‘Buddeez’, you can contact Ami Mehta Kothari at +91 9820199092 or Shalini N Kedia at +91 9820028730.

 

Categories
Big story

Shivaji statue plans on the move again

Maharashtra Government wants all permissions taken in four months, CM wishes for ‘a statue like no other’ in Arabian Sea.
by The Editors | editor@themetrognome.in

The much-disputed proposal to erect a Chhatrapati Shivaji Maharaj statue in the Arabian Sea is seemingly back on the table.

At a recent meeting convened with concerned ministers and department heads, Chief Minister Devendra Fadnavis is said to have asked that the memorial plans be ‘fast-tracked’. “The CM has asked that the memorial be of an international standard, and that all concerned departments must consistently follow up with the Ministry of Environment and Forests (MoEF) and others. He has also said that the bhoomi pujan for the memorial will be done by the Prime Minister Narendra Modi,” an official present at the meeting said.

“The CM has also urged the appointment of an experienced team to mould the actual statue, and to seek inputs from companies that have done this kind of work anywhere in the world,” the official added. It is learnt that the CM has given a deadline of up to four months for all permissions and approvals to be taken, and the bhoomi pujan to be completed.

The conceptual design for the proposed memorial has been prepared by students of the JJ School of Architecture, and these have been shown to the CM. The proposed memorial is to be erected on a rockbed in the Arabian Sea, and will be located 1.5 km from the Raj Bhavan, 3.5 km from Marine Drive and 12 km from the Gateway of India. The site will comprise the Shivaji statue, a large museum, auditorium, library, exhibition hall, and amphitheatre. As per the initial designs, the proposed statue will depict Shivaji astride a horse and brandishing a sword.

What do you think of the move to erect a Shivaji statue in the Arabian Sea? Tell us in the comments section below.

(Picture courtesy newsreporter1.blogspot.com. Image is artist’s impression of the proposed memorial site)

Categories
Event

Celebrate Bandra returns with 40 artists

The much-awaited ‘Celebrate Bandra’ festival will showcase the work of 40 Indian artists all around the suburb from November 22.
by The Editors | editor@themetrognome.in

‘Celebrate Bandra’ is back.

The latest edition is scheduled to begin on November 22, 2014 and will go on till November 30, 2014. The festival that began in 2003 was conceptualised with a view to bring people together through world-class entertainment that is free of cost and accessible to all. In the process, it showcases professional talent and provide a platform for budding talent to grow. This year it promises to be bigger and better.

Art has always been the major highlight of ‘Celebrate Bandra’. This year, visitors can spot extraordinary art forms at unexpected venues that will fill up the entire suburb, in and around Bandra. This year, 40 national artists from various cities have come together to create art works all around the suburb. Curated by renowned art curator Minali Thakkar, Art Head of the festival, ‘Celebrate Bandra 2014’ will see exciting functional, public interactive and visually appealing installations like benches, 3D street art as well as light art displayed at Carter Road, Bandstand, MET, parks and other such public locations.

Each art installation have a message to convey; for example, MET will have a huge web light art installation which is an artistic take on the current textology and Whatsapp trend. Minali says, “We wanted people to notice art in an unconventional setting. People will bump into a complete new world in their daily life setting through art and that would be a welcome change from their mundane life. Art has the energy to bring people together, emit positive vibes and bring a change in small ways and we hope to connect people through art.”

Artists are working round the clock to create art works on ground, rocks, grass, and windows using materials like fishing nets, rubic cubes, balloons and metal scrap, to name few. Be it the huge limousine or an armour skirt and choli designed to protect women, the organisers claim that each art piece will mesmerise viewers and leave them with a food for thought.

For all the art lovers and enthusiasts, ‘Celebrate Bandra’ will also host an Open Air Art Classroom in a setting where one can sketch, paint landscapes and create designs. Don’t forget to get your art bag along. This will be held on daily basis during the tenure of the festival at 4.30 pm at Carter Road Promenade and Bandstand Promenade.

Categories
Achieve

An app to help find missing children

Mumbai techies have developed the app ‘Helping Faceless’ that uses face recognition and data analytics to help trace and return missing children.
by Vrushali Lad | editor@themetrognome.in

It is a burning problem that grows in strength every year. And yet, apart from police detection, there is not much to fall back on when it comes to finding missing children in India.

Except, these Mumbaikars know what can be done – albeit in a long-drawn out process. The app they’ve developed, ‘Helping Faceless’, uses face recognition and data analytics to help trace, and hopefully return, missing children in India.

shashank singhSpeaking to The Metrognome, Shashank Singh (29), founder of Helping Faceless, says, “India has a big problem on its hands. Over 1,00,000 children go missing every year all over the country. Of these, most are kidnapped while some run away voluntarily. Many of them land up in begging rings,or are forced into the flesh trade, or end up as labourers in eateries or factories, or as domestic help. What’s more, many instances of missing children are under-reported. Something needs to be done to find these children before they are lost forever.”

What gave him the idea to start the app over a year ago? He pauses for a while, then says, “As a child, I spent some years in UP, in the 90s. When I was about six years old, I was kidnapped for five hours. I have no recollection of the incident, I only know what my parents have told me. It turns out that I was helped by a stranger and returned to my parents.”

That incident, though he has no memory of it, always stayed with him for one fact alone – that a stranger had helped him out from a potentially disastrous situation. “When I came to Mumbai in 2012 and later when I started working on this app, I realised that strangers helping each other was an extremely powerful idea, especially if it was scaled to a level where millions could help each other. My team and I hence developed ‘Helping Faceless’ to help these millions of missing children find their way back home.”

Though he started work on the app alone, today there is a small team in place, with Amol Gupta as co-founder.

How does it work?

The app is simple to use – if you spot a child in distress (either being abused, or working in hostile conditions, etc.), all you have to do is take a picture of the child, and the app auto-relays the picture back to the team’s server. “From here, the photos are referenced with the pictures in our database. When we find a match, we see the details for that missing child and contact partner NGOs and organisations in that place to seek their help in returning the child,” Shashank explains.

However, users are encouraged to talk to the child and build confidence to get details. They are also instructed to give begging children food instead of money. “Even a simple gesture such as giving a child chocolates will help the child speak with you. We encourage users to help the child in any way they can,” he says.

The team works with SOCH (Society Of Children), a TISS organisation which does the back-end work and helps guide the team through the legal steps to follow after a child’s pictures match. “SOCH also helps us figure out potential partner organisations in other cities to coordinate the process. However, each case is different and we have to work as per the requirements,” he says.

Currently, the team has over 60,000 photographs of missing Indian children in its database. “These were sourced from available police records. We are constantly building the database and uploading more pictures and information, while also reaching out to more partners. It’s a long process to begin the journey from tracing a child’s current location and returning the child home, but in a year, we have had success with three children – two from Ludhiana and one in Mumbai. That is a modest number, but the process moves at a glacial speed,” Shashank says.

Also, users must be a little careful about taking pictures of children. “Though there are no laws in India about taking a picture of a child in a public place, provided the child is clothed, we still discourage users from forcefully taking pictures. Also, sometimes it may happen that another person may stop you from taking a picture. Many users have been frightened off,” he says.

What ‘Helping Faceless’ hopes to achieve

“Essentially, we are a business that goes against another business – in this case, we are up against a $36 billion ‘illegal’ business,” Shashank says. “The best way to dismantle a business is to make it unprofitable. Using an app like this, though it seems like a small step, will help us hit back.” He adds that the crux of the app’s ethos lies in the public and police working together to solve these terrible crimes. “The bigger goal is, in four to five years, to have enough data to be able to predict a crime, and data analytics allows us that. The difference between trafficking and crimes of passion is that there is a time lag involved – the trafficked child is taken from spot to spot by public transport normally, there are specific train routes that traffickers use. We can empower the RPF to use the data and intercept the crime in real time,” Shashank explains.

He has shown the app to police officials in some Indian cities, and says that cops are interested in it because the same technology is also useful to catch criminals. “I would say that the same technology can be used to find all missing persons, criminals or not. However, we realise that currently there is a high churn rate among the app’s users. So we are working to make it more community-based and engaging to the user. We have about 3,000 people installing the app per month and signing up, but many of them drop out later on.” The improved app will roll out in two weeks’ time, he says, and so will its iOS version.

Currently, the team has about 30 dedicated volunteers, most of them from Mumbai. “We have found the highest response from Mumbai and Bangalore, while Delhi has the poorest response to the problem,” Shashank says. “Unfortunately, public support is lacking for initiatives like this. People are happy to give money to a child that begs, instead of talking to the child and taking a small step towards helping him or her out.”

‘Helping Faceless’ is available on Google Play Store and on Facebook: /helpingfaceless. 

(Featured image courtesy borgenproject.org. Image is used for representational purpose only)

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